Measurements of aortic diameter can be made with echocardiogram. Thank you for what you do and for your responsiveness. Semilunar valves: The pulmonary valve and aortic valve. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. Probably wise to follow the advice of your doctors who know the details of your situation. Index to blog posts and online articles, Filed Under: Heart problems Tagged With: aorta, aortic aneurysm, arotic valve, bicuspid aortic valve, congenital heart disease, heart, heart surgery. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. Males are affected 3:1 compared to females. But thats just anecdote. No information provided by Baldwin Publishing, Inc. in any article is a substitute for medical advice or treatment for any medical condition. I get sporatic tingling in my left hand and footand every so often in my left cheek bone. As I have aged I have upped the reps to 15 or more and two or three sets max, sometimes doing a set or two of 5 reps with heavier weights. Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. I can tell my story. This visit we were told it could be a few years before anything needs to be done. Perhaps you could print out the diagram, take it with you to the cardiologist, and ask him/her to circle the forms of exercise that would be safe in your case. But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. running? I take BP medication namely Amlodopine & Ramipril which has lowered my BP. Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. I know they really should get checked, and they will. We have decided to wait and watch. I was disappointed [when I was diagnosed]. My consultant informed me that, because of my age, I would have a mechanical valve fitted which meant that I would be on warfarin for life and therefor not be able to play football. My mom [and aunt] passed away [in their 60s from heart disease], and my dad had a heart attack when I was around 10 and he had a triple bypass, the actress told PEOPLE. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. No stenosis, no calcification. To me, cardiologists are not sports people and air on being absolutely over cautious. I have also spoken with Boston Childrens Hospital who have been very helpful and enlightening. It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. Thank you for the blog that addresses the athletes point of view, and feelings. No pulmonary hypertension Use of this site constitutes acceptance of our User Agreement and Privacy Policy and Cookie Statement and Your California Privacy Rights. March 6, 2023, Erin Feaker Today, echocardiography (ultrasound) for screening or diagnostic purposes for some other heart problem is the most common way that BAV is detected. Bicuspid aortic valve (BAV) and congenital aortic stenosis are two types of heart defects that may be present at birth. A bicuspid aortic valve is a common cardiovascular condition, affecting about 1% of the general population. Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). I have 4 children and a great wife. These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. They all underwent aortic valve replacement. "The 1997 heart valve replacement was never meant to be permanent," stated Daniel Ketchell, a spokesman for Arnold. Your responses mean a lot to myself and no doubt others on this forum. Consensus guidelines suggest that athletes with mild aortic regurgitation and no other heart problems can participate fully in their sports. In short, is it too early for me to start talking to a surgeon to identify available options? We all appreciate it. Males are about twice as . Currently complete in 5-a-side football and have done for life. Thats about as specific as he got. Im a 33 yro female, diagnosed with BAV. Enjoy! We go back in 3 months for another echo. I am playing basketball I am doing 100m and 200m and swimming . Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. They seem very busy and its taken almost a year to get to this stage. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American Heart Association to raise awareness. The procedure has the potential to bring the aorta to 4.3/4.4 and avoid further enlargement. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. We have got two completely different opinions from our cardiologists: And now my aortic root is 42 mm. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. host, 76, suffered a mild heart attack in 2012. Over the past 3 years, my endurance has declined significantly, and now I cannot run a lap on the treadmill without some walking; however, my numbers from the semi-annual utrasound have not changed much. Thank you very much for the answer! March 10, 2016 at 1:50 pm. He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. ps. Did you run? What Is Bicuspid Aortic Valve Disease? We have contacted the Cleveland Clinic to learn more and will report back soon. I will keep you posted. Historically, a heart murmur was the most common reason affected individuals were identified. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. Hi Dr. Creswell. That said, the recommendations dont address WHEN that screening should occur. No stenosis or regurgitation, aorta 27 mm at the time. With aortic root 39mm. Consensus guidelines suggest restricting activities in athletes with BAV and aortic diameter >4.0 cm. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). What is a TAVR? In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. "Were saying to put the focus back on you and make a date with your heart.". I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. While my surgeon said that I can do whatever normal healthy person would do my cardiologist gave me some restrictions basically not to raise my HR over 120. 2. We are trying to work out a way for her to continue to play. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). Yes, I am aware of the work by Dr. Dietz. 1. Practice Essentials. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. In January 2021, she underwent open heart surgery to install an aortic valve. Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. We are now seeing moderate stenosis, hence replacement in the not too far distant future. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. thanks for sharing all this interesting info. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. Thats an issue to pursue with your sons doctor(s). On said it wont make a real difference, the other said oh yes, that was like a blockage, you will feel the difference. Sounds like youre on the right track by getting things evaluated. Your doctor will be in the best position to know all of the relevant information and offer sound advice. View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. Thank you very much for your thoughtful response. I didnt get it.". I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. I am young with many years ahead, I dont want to accept this just yet when I know theyre is possibilty of repair. During the Ross Procedure, the aortic valve is removed. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. Its awesome to see you are diligent at responding to people also. It can also lead to aortic stenosis , and is more . I have read that strength training is beneficial for heart health. i.e. For those same patients, we recommending avoiding strenuous dynamic exercise line swimming, running, soccer, tennis, cross-country skiing, etc. Diagnosed last year while looking at something else. Does the (unreplaced) aorta enlarge over time? Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. Celebrities with congenital heart disease Details Published: January 27 2016 . My family is pressuring me to quit strenuous cycling but I am thinking that switching to longer rides at lower heart rates would not accelerate valve wear or otherwise be bad for me. As a result, the valve doesn't function perfectly. Together, you should be able to settle on what sports activities will be safe based on those facts. Last few weeks Im getting chest pain on left side (very rarely on right side) while running and doing push ups. From your standpoint (and your sons), it will be important to have that dialog to sort out whats safe. Celebrities With Heart Disease - Celebrity Heart Health Survivors. I have question about your opinion about aortic valve regurgitation (no BAV) Some people with bicuspid aortic valve will have symptoms in early childhood. In your experience, can patients with BAV go a lifetime without having AVR? Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. At the USC Cardiovascular Thoracic Institute, we are dedicated to improving the statistics concerning cardiovascular and thoracic disease such as those once faced by the governor, said Starnes, who also serves as executive director of the Institute. I dont know why this formed as I have had the problem valve replaced many years ago. Abstract. Am I crazy? Im hoping you can help with some guidance. To continue to live this amazing life so full of challenges and friends, including so many of you in the audience, I have chosen to replace the valve with a new one. My cardiologist (whom I trust) said to keep working out like I always have (good news for me). I dont think theres a way to predict the future in this circumstance. At 4.0 cm, its important to be thoughtful about activities. Finally some solid information about exercise and life post AVR, thank you very much for that. Frequency of congenitally bicuspid aortic valves in patients 80 years of age undergoing aortic valve replacement for aortic stenosis (with or without aortic regurgitation) and implications for transcatheter aortic valve implantation.Am J Cardiol. For healthy individuals who have BAV with no other heart or aortic problems, follow-up imaging with echocardiogram and/or CT could probably be undertaken annually, or perhaps less often once stability is ensured. Theres no reason to not be CPR certified.. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. But I recognize that not all cardiologists or heart surgeons would agree. For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. The valve may also become stiff due to calcium deposits on the leaflets over time. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. And my wife is screaming at me every time I try to exercise :)). Also hypertension in both arms. Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. My son was just told he made the varsity basketball team as a freshman. Hi, Further to this most recent discussion point I was advised that isometric exercises, such as planks and other pilates type activities, as I understand them, are perfectly safe with BAV. Bicuspid aortic value ppg 24 mmhg In both echocardiographic cohorts and surgical series, pure aortic regurgitation is significantly less common than stenosis. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. No enlargement of aorta or any other problems. This is the way I can help. The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. On Monday the 13th, I had my annual echo. Soccer is his only sport and his passion- he plays on his high school team and a travel team. Normal great vessel size My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. I know I will need it replaced. With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. My heart seems to heal, so that speaks well for my future.. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. Bicuspid aortic valves are more common in men, but also affect women. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. How long does it take for the homograft to completely heal? It also featured an extended chat with Schwarzenegger's old boss James Cameron, and, despite an attempt, not even the mighty Arnold could pry any Avatar 2 secrets loose. My 25 year old son was just diagnosed with BAV AR (3+). Weight-lifting is only one example, but others would include golf, bowling, shooting, etc. I have been doing as much research as possible on what are the advantages/disadvantages of each replacement. coarctation of aorta. The aortic valve prevents blood from flowing back into the left ventricle of the heart. 1. I had surgery when I was 10 years old to replace my bav with a St.jude mechanical valve. These differences of opinion may be legitimate. I have been given no restriction to date in any physical exercise as my valve is in decent condition. This also assumes that there are no other cardiac issues or medical problems to consider. Fast forward, he is now 13 and we went yesterday for his yearly. However, I always performed poorly when it came to the top end fitness tests e.g. Most patients (like me), however, start to experience problems during their 30s, 40s, and 50s. OPTIMUM HEALTH, INC He has been restricted from playing contact sports since hey was 10. In addition to the European guidelines, there is also an American set of guidelines published in the Proceedings of the 36th Bethesda Conference. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. Best to mention your participation in the marathon when you have the tests done. Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. Barb. Context Bicuspid aortic valve is the most common congenital cardiac anomaly in the adult population. Key points about bicuspid aortic valve.